Update!!
Hello! Sorry I haven't written in a while, have had a lot going on. I plan on getting back on track with the writing of the blog. I have a few ideas to write about and will be coming out in the next few days. Today, I'm starting off with an update since I had a few appointments in Boston yesterday.
First, I always leave my house early because of traffic, but yesterday I hit traffic everywhere possible! It was awful, it took me 2 hours to get to Boston and i was half an hour late for my first appointment. Thank goodness all the secretaries are so awesome and when I called ahead to let them know, they said it was fine. They know I come from far away. Everything ended up working out, but still I always feel horrible for being late and messing up people's schedule's.
I saw my immunologist first, and things were okay. It was just a check up really with him. I'm currently on an IV called Hizentra that helps build up some of my antibodies. He also told me to stay on my antibiotic that I take weekly, until Spring/Summer. I see him again in June, and we'll see how I do off of the meds then. I was also sent for blood work to check my antibody levels.
Next, I saw my rheumatologist, things went okay there. He found inflammation in my right knee and the right side of my jaw. I've been off prednisone for almost 2 weeks now, so it could be because of that. We discussed different options and both decided to try to up the Methotrexate and see how I do on that. Before, my hair was falling out bad and I was put on a vitamin to help it slow it down, which it has. Hopefully upping it doesn't cause any side effects, but we will have to wait and see. I got sent for blood work for that also.
Last, I went to have a bone density scan. I won't know anything about that for a week or so. I tried sneaking a peak to see my T-score, but I failed to see anything. Overall, my appointments weren't too bad, now I just have to wait and see basically. Which, is I all I seem to do lately, just wait for results, but that's life I guess. In the meantime, I am just working on getting better, and living a healthier lifestyle by eating better and exercising more. I've been at it for 3 weeks, and so far it's been good. :)
First, I always leave my house early because of traffic, but yesterday I hit traffic everywhere possible! It was awful, it took me 2 hours to get to Boston and i was half an hour late for my first appointment. Thank goodness all the secretaries are so awesome and when I called ahead to let them know, they said it was fine. They know I come from far away. Everything ended up working out, but still I always feel horrible for being late and messing up people's schedule's.
I saw my immunologist first, and things were okay. It was just a check up really with him. I'm currently on an IV called Hizentra that helps build up some of my antibodies. He also told me to stay on my antibiotic that I take weekly, until Spring/Summer. I see him again in June, and we'll see how I do off of the meds then. I was also sent for blood work to check my antibody levels.
Next, I saw my rheumatologist, things went okay there. He found inflammation in my right knee and the right side of my jaw. I've been off prednisone for almost 2 weeks now, so it could be because of that. We discussed different options and both decided to try to up the Methotrexate and see how I do on that. Before, my hair was falling out bad and I was put on a vitamin to help it slow it down, which it has. Hopefully upping it doesn't cause any side effects, but we will have to wait and see. I got sent for blood work for that also.
Last, I went to have a bone density scan. I won't know anything about that for a week or so. I tried sneaking a peak to see my T-score, but I failed to see anything. Overall, my appointments weren't too bad, now I just have to wait and see basically. Which, is I all I seem to do lately, just wait for results, but that's life I guess. In the meantime, I am just working on getting better, and living a healthier lifestyle by eating better and exercising more. I've been at it for 3 weeks, and so far it's been good. :)
posted by Mallory | 3:33 PM
0 Comments:
Post a Comment
Subscribe to Post Comments [Atom]
<< Home